Sources of further information about shared decision making


Journal Articles, Reports and Books:

Elwyn G, Laitner S, Coulter A, Walker E, Watson P, Thomson R.
Implementing shared decision making in the NHS. BMJ 2010;341:c5146 http://www.bmj.com/content/341/bmj.c5146

Coulter A Do patients want a choice and does it work? BMJ 2010;341:c4989
http://www.bmj.com/content/341/bmj.c4989

Shared Decision-Making in Health Care: Achieving evidence-based patient choice Second Edition A Edwards, G Elwyn 2009 Oxford University Press, Oxford

Al Mulley King's Fund Report. Patients' preferences matter: Stop the silent misdiagnosis
http://www.kingsfund.org.uk/publications/patients%E2%80%99-preferences-matter

King's Fund report on Delivering better services for people with long-term conditions: Building the house of care
http://www.kingsfund.org.uk/publications/delivering-better-services-people-long-term-conditions

NHS England's Transforming Participation in Health and Care, Guidance for Commissioners
http://www.england.nhs.uk/2013/09/25/trans-part/

Health Foundation review on interventions to support self-management
http://personcentredcare.health.org.uk/resources/helping-people-help-themselves

Gigerenzer G. Reckoning with Risk: Learning to Live with Uncertainty. Penguin, 2002.
http://www.amazon.co.uk/Reckoning-Risk-Learning-Live-Uncertainty/dp/0140297863

Gigerenzer, G. (2007). Gut feelings. London, Penguin.
http://www.amazon.co.uk/Gut-Feelings-Better-Decision-Making/dp/0141015918


Local resources:

North east Community of Interest in SDM: http://www.jiscmail.ac.uk/SDM-NORTHEAST and to join the community of interest please contact melissa.girling@newcastle.ac.uk

Access to "Just ask" video - http://personcentredcare.health.org.uk/resources/developing-brief-promotional-film-about-shared-decision-making-use-patient-waiting-areas

Health Foundation video of experience of implementation of SDM in the North East: http://personcentredcare.health.org.uk/resources/shared-decision-making-0

NUTH web pages on SDM - http://www.newcastle-hospitals.org.uk/patient-guides/making-decisions-about-care-and-treatment.aspx

Decision Making and Organisation of Care Research Programme, Newcastle University - http://www.ncl.ac.uk/ihs/research/dmoc/


Web sites and films:

Shared decision making & decision aids

MAGIC programme (SDM Implementation Programme funded by the Health Foundation) - http://www.health.org.uk/areas-of-work/programmes/shared-decision-making/

NHS Right Care Decision Aids
http://sdm.rightcare.nhs.uk/pda/

Brief Decision Aids (from MAGIC)
http://www.patient.co.uk/decision-aids

Patient.co.uk - links to above decision aids and some others via patient.co.uk
http://www.patient.co.uk/decision-aids

Option Grids
http://www.optiongrid.org/

The International Patient Decision Aid Standards (IPDAS) http://ipdas.ohri.ca/ and latest published updates http://www.biomedcentral.com/bmcmedinformdecismak/supplements/13/S2

The Ottawa Hospital Research Institute (OHRI), including an inventory of PDAs http://decisionaid.ohri.ca/

Center for Shared Decision Making (CSDM) in Dartmouth, USA - a leading international exemplar http://www.dhmc.org/webpage.cfm?site_id=2&org_id=108&gsec_id=0&sec_id=0&item_id=2486

Mayo Clinic Knowledge Evaluation Research Unit: http://www.mayo.edu/research/labs/knowledge-evaluation-research-unit/knowledge-evaluation-research-unit-ker

The Informed Medical Decisions Foundation: a leading US Organisation for SDM and PDAs
http://www.informedmedicaldecisions.org/

University of Sydney Decision Aids - http://www.psych.usyd.edu.au/cemped/com_decision_aids.shtml

AQuA resource site for SDM - a range of resources including videos and on line training: http://www.advancingqualityalliance.nhs.uk/sdm/

Inventory of SDM education programmes - http://decision.chaire.fmed.ulaval.ca/index.php?id=180&L=2

Risk communication (a superb site run by Prof David Spiegelhalter)
http://understandinguncertainty.org/

Database of SDM Measures
https://www.gem-beta.org/public/wsoverview.aspx?cat=8&aid=0&wid=14

Brilliant evidence-based medicine and SDM YouTube clips from Dr James McCormack http://www.youtube.com/user/jmccorma1234/videos

Support for self-management & patient involvement

NESTA People Powered Health website & resources
http://www.nesta.org.uk/project/people-powered-health

Health Foundation patient-centred care resource centre
http://personcentredcare.health.org.uk/person-centred-care

Co-Creating Health (chronic disease and supported self-management programme funded by Health Foundation)
http://www.health.org.uk/areas-of-work/programmes/co-creating-health/

Year of Care (personalised care planning for people with long term conditions):
http://www.yearofcare.co.uk/

National Voices - Principles of Care and Support Planning
www.nationalvoices.org.uk/principles-care-support-planning